Marie (not her real name) is 53 and is separated from her husband, although they are still legally married. Despite her many health issues, she has been his full-time carer for four years. He has dementia, while she lives with chronic arthritis, anxiety and panic attacks, depression and anger management issues. They have four sons in their 20s – three of whom still live with Marie. All four of her sons have mild to moderate learning difficulties.
Left with no benefits, she came into the London food bank last week with three of her sons for some help. Her employment and support allowance (ESA) – a benefit paid to the sick and disabled if they are unable to work – had been withdrawn. It was stopped following a Work Capability Assessment (WCA) carried out by Atos (whose controversial contract with the government to undertake the tests is ending early). She was declared fit for work and her ESA payments officially stopped on October 16th – a day before her 53rd birthday.
In reality, she says her household hasn’t received any money – other than one son’s jobseeker’s allowance (JSA) – since October 7th. When she began signing last week for JSA, she was not informed by staff at Jobcentre Plus when she would receive a payment. ‘I was due a payment on my birthday week, and that’s when I was told I wouldn’t get anything. I was beside myself – I was crying a lot. I didn’t know how I was going to pay my bills.’ Another son who lives with her has been told he has to go back on ESA, and her third son who lives at home is in the process of applying for ESA.
She’s very concerned about the impact of her dire financial situation on her housing. ‘Before the ESA was stopped they (the housing association) said that if I did not pay a certain amount of money I would be kicked out. They know my situation and I’ve got a month to let them know what payment I’m going to get.’
Marie broke down in tears as she explained her situation. One of the food bank volunteers brought her a cup of tea. She said that she’s the only person in her house who can read and write, and that she’s been trying to explain to Jobcentre Plus about her sons’ learning disabilities. She described a disconnect between what staff there are asking the young men to do and what their mother believes they can realistically manage. She’s also worried about the impact of the staffs’ approach on one son’s state of mind. ‘They had been telling my sons to do certain things – to meet certain criteria. They are trying – but they don’t meet the criteria required by work plans. They’ve got to look on the computer for jobs (on Universal Jobmatch).’
‘What upset me the most was that my youngest son, who’s 23, saw a disability officer at Jobcentre Plus – and she told him that he didn’t know anything. She was implying that my son was thick and that upset him and he was crying.’
Marie has applied for a mandatory reconsideration of the decision to turn down her ESA application. She is most concerned about having to stop caring for her husband, if she has to now actively search for work. ‘I can’t leave my husband, as my sons wouldn’t know what to do then things get tricky. I’m very loyal to him. I get upset because he’s got dementia and his memory is getting quite bad now. The life expectancy for what he’s got is about eight years. Because he’s been my rock, it’s been hard for me. In the past I could go and ask his advice.’
She adds: ‘My husband is on a low budget – yet he’s been giving us a little money and food. It makes me feel awkward, because he’s on a tight budget himself.’ Her house is cold, she has to use key cards for her gas and electricity and put a little money at a time on them. To wash, they have to fill up the kettle and use the sink. Her sons and herself suffer from chest problems. Places like the food bank (this is the fourth time she’s had to use it) have ‘ taken the pressure off, but it’s hit my self-esteem and dignity.’ But she says that if it hadn’t been for the food bank she doesn’t know what she would have done – as she has no support network.
A month ago she says she was recovering from a nervous breakdown, ‘because stuff was getting too much and I felt like ending my life – but I’ve got responsibilities to my husband and kids’. She says the stress she’s under is causing her to lose weight and ‘my hair is falling out’. She talks to mental health charity Mind and to her GP. She says her GP, who has known her for 30 years, is ‘disgusted’ about the way the welfare system has handled her case.
She says she expects a decision on the mandatory reconsideration this week, and that if the answer is another refusal, she will immediately make an appointment with Citizens Advice to discuss next steps.
Marie left the food bank, with her sons helping her carry the bags of food.
This is how what some policy gurus might call ‘radical changes to the welfare system in the UK’ are converging to impact one family in London – the capital city of the world’s sixth richest economy by GDP.